Friday, May 29, 2015

The 29th: always a day of reflection

January 29th, 2014 was the day of my transplant so the 29th remains a day that is etched into my brain so to speak. Today marks 14 months post transplant.

The big health news is that I am finally off the " damn steroids". Phew. Mind you they are a miracle drug when you need them but I am immensely relieved--- after 3+ years of almost continual use--- to be steroid free. Eoin commented that my energy was more " Sile energy" as opposed to " steroid energy" so I am assuming that that  is a good thing. ( you never know with your children...!). And my huge cheek bruise has finally faded to an acceptable hue. In other words I don't look like a prize fighter anymore. Despite minor aches and pains I feel very good. Drs Cecchi and Nakamura remain happy with my progress and joke that my counts are so good that I can donate blood!

On the work front, in addition to tutoring, I am also doing a spot of teaching--- 3 hours per week to seniors in Chinatown. It is enormous fun and it is refreshing to be back in front of a group. I have also been doing some Skype tutoring which is magical in a way.  For me to be sitting here in California and teaching someone in France or Pakistan is kind of amazing.

Donor Frank and wife Janet were visiting 2 weeks ago and one of the many fun things we did was visit Pixar for a preview of Eoin's latest movie "Inside Out". We all loved it. Make sure you go to see it when it comes out--- June 19th. And cheer when you see Eoin's name in the credits. His name appears twice no less. 

The famous Úna is talking up a storm. The only problem is that we don't always  understand her. Last week in Carmel she demonstrated that she knows our names--- well a version of them anyway.
O E for Eoin. OG for Gershwin (dog) and both Jim and Ralph are " Raf".

As always I remain incredibly appreciative of all of you and of the many ways you keep me afloat! Thank you. Xxo


Eoin and Ainaté with friends Colin and Steve on their way to the Inside Out wrap party


Eoin and I on Mother's Day ( of course we coordinated our outfits)


Úna taking her job as Jim's helper very seriously 




Nóra and Úna enjoying the beach in Carmel