Monday, June 2, 2014

4 month checkup with Dr Nakamura

Úna and Síle sporting our sun hats . We are racing to see whose hair grows the fastest!


Jim and I spent Friday May 30 down at the City of Hope. Everything went extremely well and I was very happy to be there. I think it will always be a kind of home for me given that it is the place that literally has given me a new lease on life.

Dr Nakamura is very pleased with my progress. He even used the phrase " a successful transplant" which of course was music to not only my ears but Jim's too. I think he was a bit disappointed that he was not able to start decreasing the number of anti rejection drugs. The reason? I have had a touch of intestinal GVH ( Graft vs Host disease) OR it could be that my intestinal tract is just recovering from all the indignities it has suffered. Either way he has me back on steroids and some other drugs. But.....I feel fine! 

Alas he does not want me back singing with my chorus (BCCO) until at least January 2015. His exact words were: " Too many people. Not enough control over your environment". I gather that my new immune system will not be fully developed until the one year post transplant mark and it is true that 195 people in an enclosed space adds up to a lot of germs. He totally nixed the idea of swimming in lakes too! 

Donor Convery, aka my brother Frank, begins his new job today ( Monday June 2) as chief economist for the Environmental Defense Fund in NYC. He will return to Ireland regularly in the next few months however as my sister in law Janet is undergoing chemo for early stage breast cancer. Loads of positive thoughts are streaming across the country and the ocean to both of them. My sister Máire returns to Zambia on Thursday after having been here 6 whole weeks. A big shout out to her for traveling such huge distances to take care of me.

It is great fun getting to see many of you again. I am truly blessed with all of you, my fabulous, wonderful, fantastic, group of friends and family.



Úna modeling the sweater Joanna Davenport knit for her 


Úna demonstrating her new crawling skills


No caption needed!